One of the major tasks in HEADSpAcE was to collect, follow up, and harmonize data and to standardize the sample collection and quality among all the HEADSpAcE member institutions. For this, the following study resources were developed and validated to help potential additional projects in the collection of data and materials.
All HEADSpAcE forms were built in REDCap. You can directly access the REDCap XML file below to import the forms directly into your institution’s REDCap platform.
Note: These forms were created at the start of the HEADSpAcE project. It is possible that there are now more streamlined ways to enter this information (i.e. longitudinal forms). Feel free to amend the organization of these questions.
(this is currently being updated and will be shared here soon)